Blog Posts

Freedom Day

Disability is the only minority group that anybody can join at any time, the only one YOU will definitely join at some point in your life. 

‘Society is defined by how it treats its most vulnerable’

I know many are excited about Freedom Day but… What is freedom if 30% of the population are left behind? Not just disabled people, but the people they come into contact with, their families, friends, and carers. We are all connected. Our actions affect each other. 

So, I am begging you. Disabled people have suffered enough. We have all suffered enough! So many have been restricted from visiting loved ones in hospital. Some haven’t been able to see family at all in years. There have been far worse tragedies during these months than having to keep a distance or wear a mask. These restrictions are not infringing on your freedom. Forcing vulnerable people to lockdown and live in fear is infringing on their freedom. So, Freedom day is not freedom for a third of the country. 

Scrap Freedom Day, and use your voice to ask for the access that has been provided to be made permanent for the disabled people who have been pleading for it for decades: Online learning, remote working, virtual entertainment. Scrap Freedom day and spare a thought for the people who have been trapped in the same four walls all this time, no garden. Scrap whatever imagery you have or ‘returning to normal’ being positive when the NHS is still overwhelmed, and many are still dying because of it. 1,2000 scientists have labelled this move by the government ‘an unethical experiment’ and have advised against it on the grounds that easing restrictions makes England a threat to the world.

Yes, everyone’s suffering, but is it right to let 30% of the UK continue in even more fear, danger and difficulty, to give ‘freedom’ to the rest? What kind of freedom is that? It looks like eugenics to me.

We can make real life impact, so please, speak up for the ones left behind, and ask that restrictions be kept in place. If you are not disabled, we need your voice. Disability intersects with every other community, (30% of the LGBTQ+ Community are disabled) and it is the only minority group that anybody can join at any time, the only one YOU will definitely join at some point in your life. 

Blog Posts

NHS Staff Deserve Better

We clap for them, we praise them, but what are we actually doing to change things for them?

I have been in even more excruciating pain than usual, and I should have gone to hospital a lot sooner, but due to a history of medical gaslighting and dealing with constant pain, I find it hard to register when something hurting is ‘serious’. By which I mean, it is impossible to know when a hospital could actually help, especially if they usually make things worse. Not just if they are rude or if I experience a flare from sitting in the waiting room for hours, or if they don’t take my bloods properly and put me in more pain, but also because going to hospital when you’ve had bad experiences can be quite traumatic. Something happened. And for the first time in my life, when I went to hospital it showed up on a scan. It showed up in my blood tests. It showed up in the faces of the doctors who didn’t look at me like I was lying.

The doctors taking care of me on this occasion were very caring. It was my first inpatient stay as an adult rather than a child, and that changed how I was treated but also how I perceive the NHS. I now notice just how much is systemically wrong, how trapped the staff are in a system that is under so much strain, how new doctors are taken advantage of, and experienced doctors are desensitised. No matter how much these health professionals want to serve, they are often restricted by the pressures of bureaucracy and ‘efficiency’. For the majority of the doctors I have seen (note, the good ones, the kind ones) English is not their first language. And yet Brexit and our xenophobic laws mean we have created an unwelcoming environment for them, and we are limiting a great number of incredible healthcare professionals from coming to work in the UK by stopping freedom of movement. We clap for them, we praise them, but what are we actually doing to change things for them? Donations alone are not going to fix this system or change these laws. I hope in the next general election our votes reflect what our NHS workers deserve, because it is not this.