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How to Date a Disabled Person

‘Don’t Miss Out!’

Andrew

This is a guest post from my partner, sharing his top 5 pieces of advice after dating me (a disabled person) for 3 years. Obviously this is based on our relationship, and therefore is not about casually dating, though some of these tips might be helpful for both! – Blossom

Communicate

It’s the most important thing in any relationship, but it’s particularly important when someone is disabled. This is because you have to learn each other’s limitations. Make sure you are both comfortable enough to ask questions to quicken the learning process.

Plan

Make them as comfortable as possible by planning everything before hand. This will mean they aren’t as stressed about going out because they can prepare beforehand and also adapt the plan if they feel like it’s too much. Examples of planning a trip with a disabled person can be found here!

Nobody is a Burden

Make sure your partner does not feel like a burden. Just because they don’t have the same abilities as you doesn’t mean they can’t be fun or do fun things, it just means you might have to get a bit creative with activities. So don’t pressure anyone into doing things or assume what they can/can’t do. This could be anything from going on a walk to intimacy.

Understand

A Relationship with a disabled person might get serious more quickly than others- this isn’t something to be frightened by. The reason this happens is because they often have to think a lot more about the future than other people. Don’t be scared by this, just take it as a compliment and move on. It doesn’t mean they want to get married this second, it only means they have to think about things in more depth sometimes.

Adapt

Everyday is different- Chronically Ill people can have very fluctuating energy levels and this means that one day they could be feeling ok and they next they are in more pain or too tired to do anything. Just remain flexible and make sure you are ready to help on the bad days. You can do this by asking questions like ‘what do you need right now’, ‘Can I do anything for you?’, ‘Do you need *insert medication, hot water bottle, drink, etcetera!*’ Once you know the person better you will be able to anticipate their needs more, like turning on their comfort show during a flare up or having their favourite drink prepared before they ask!

Some of the most funny and interesting people are disabled! Don’t miss out on great people just because of presumptions you’ve made about them.

How to Date a Disabled Person

Written by Andrew

Every relationship has difficulties, and every relationship will probably be impacted by illness at some point, so don’t be afraid of the unknown! Disabled people are just people, we all have different needs and likes and dislikes, complexities and flaws. If you both want to be with each other, there’s nothing you can’t work through together. Thanks for reading!

HB x

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Instead of ‘Get well soon!’

If you, too, squirm every time you hear ‘get well soon!’ Then this is for you, with love, from me 🥰

I just want to preface that there is nuance here! Of course the intentions of ‘get well soon’ are good and it’s a way to show you care. But for many of us with mental health conditions, chronic illnesses, disabilities, or many other ailments, hearing it over and over again can be really grating, passive, and is a reminder of something that might not, or in some cases will never, happen. In some cases, when said repeatedly even after being told by someone that these words are hurtful, they are an ableist microaggression. I am done with feeling ashamed about not liking these words. Why on earth wouldn’t we all want to use more inclusive language? Why wouldn’t we want to say something that is more helpful than just ‘feel better’? If this isn’t for you that’s fine, I hope another post of mine is more helpful! But I think language can be really important in helping us empathise with other people. In this case, people who are constantly ‘not well’ and may never be completely ‘better’ 🌸 

Obviously the relationship you have with the person dictates what you will say, but if in doubt, a funny meme or cute baby animal picture is usually guaranteed to make someone feel loved! 

ID: Title reads ‘what to say instead of get well soon’ with six cute illustrated mushrooms, each attached to a different phrase: 1 you’re coping really well!

2 would you like to talk about it?

3 I’m here for you

4 I’m happy to listen to you

5 that sounds so hard

6 let me know if I can do anything

to help?

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How to cope with Endometriosis

Don’t know what Endometriosis is? Check out Lifting the Lid on Endometriosis

Painful Periods are NOT normal. If you have periods that are so painful that they affect your daily activity, go to your doctor urgently and do not give up until you receive help and support.

Endometriosis is an inflammatory chronic condition. Unfortunately there is no complete cure, and some things will work better for some people and not work at all for others. However, here are my own tried and tested coping techniques for this incredibly painful condition.

🍵 green tea has been found in some studies to have a positive impact on those with endometriosis 

❤️‍🔥 everyone knows how comforting a hot water bottle can be, and it is a reliable aid for any cramp

⚡️ I CANNOT begin to express how much of a life saver my tens machine has been! This post is not sponsored by @ovira but they are a wonderful company I use my ovira tens machine every day, it helps my chronic joint pain as well as my Endometriosis pain. Shop for your own here!

☀️ I am sure many of you are aware how beneficial Vitamin C, Magnesium, and Vitamin D are in general, but they are also wonderful for Endometriosis! Starflower oil is another supplement that many find helpful.

🍣 eating a diet of nuts, seeds, avocado, fatty fish and other anti-inflammatory food can lower inflammation and strengthen your immune system! 

💦 drink more water! A reminder we always need, or at least I do!

❗️When I say women/female I mean the literal definition, those with female anatomy. This includes trans men, intersex people, and nonbinary people. 

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Medical Sexism & Endometriosis

Don’t know what Endometriosis is? Check out Lifting the Lid on Endometriosis

Painful Periods are NOT normal. If you have periods that are so painful that they affect your daily activity, go to your doctor urgently and do not give up until you receive help and support.

The medical concepts of most diseases are based on male physiology, to the extent that women are dying because some doctors treat women like men.

The Guardian, Marie Claire, Harvard

Pain in women is not taken seriously. Fatphobia, racism, classism, poverty, and more, all contribute to injustice in the healthcare system. But when it comes to the medical sphere, sexism is perhaps the most predominant form of discrimination. The medical concepts of most diseases are based on male physiology, to the extent that women are dying because some doctors treat women like men. There is one thing that would save the lives of so many with Endometriosis: Listening to female patients. 

When I was diagnosed with endometriosis last year I was told it had been growing for up to 8 years. I had debilitating periods my whole life, to the point where I couldn’t attend school, couldn’t move from bed every month. I was told that Ehlers Danlos Syndrome makes period pain worse, so thought I just had to deal with it like every other symptom. Due to gaslighting from doctors and teachers, I did not take my pain seriously. Constant pain is my normal, so I couldn’t tell the difference when the pain was fatal! Please don’t make the same mistake I did. Endometriosis is extremely serious, and many people don’t realise they may have it.

If you have endometriosis or any other chronic condition I want you to know this. You are not overreacting. You are not weak. You are not lazy. You are coping incredibly well with something that makes it nearly impossible to get out of bed each day and choose to continue living. 

❗️When I say women/female I mean the literal definition, those with female anatomy. This includes trans men, intersex people, and nonbinary people. 

Image Description: The words ‘Part of being a woman and dealing with reproductive health is being treated like you’re not human. Is being treated like you’re a robot, and you’re supposed to wake up every day and get over it – Halsey’ next to a drawing of Halsey

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Feeling Ill?

Things that helped me survive Covid, and should help you cope with any illness:

💉 Vaccines!!!

🫁 Deep Breathing Exercises

🧊 Migraine Patches

🍯 Honey, lemon, ginger & apple cider vinegar in hot water (a dream for sore throats!) 

🧼 Bubble Baths

🍋 Honey & Lemon flavour chloraseptic anaesthetic throat spray

🍊 Vitamin C & Probiotic

🤧 When you’re sick, do less than you feel able to, fatigue is hard to deal with so don’t go back to your ‘normal’ too soon! Take any exercise or movement gently.

😴 Make sure you rest as much as you can, put on a good TV show or your comfort movie, sleep lots, and keep drinking water and warm drinks. My chosen distraction was The Good Place, a show that I can confirm only gets better with rewatching!

😘 Your work and other responsibilities can wait. Nothing is more important than your own health so try to clear your plans and schedule time to just heal. (this is harder to do in practice, of course!)

Sickness on top of chronic illness or disability is hard for so many reasons, so if you, like me, have to deal with both, I hope you are really proud of yourself! Your strength is hardly ever recognised and even less frequently celebrated, but I see you. You’re doing great, sweet tea 🤪☕️

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‘Survival of the Fittest’

It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is most adaptable to change.

Charles Darwin

Charles Darwin is often used to back eugenics. Disguised as ‘natural selection’ and ‘survival of the fittest’ some people believe that vulnerable people dying is absolutely fine. That has been made more than clear during the pandemic. But evolution does not mean eradicating disability, disability will always exist. This is what Darwin actually said: ‘It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is most adaptable to change.’ And who is the most adaptable to change? Disabled people. We have to adapt every single day. 

It is on society to develop technology and accessible design so that disabilities aren’t as limiting as they are today. Just as glasses mean that lots of visually impaired people can see to the extent they are not even considered disabled. Just as wheelchairs mean that many disabled people are able to be independent. Imagine if we developed painkillers to help those in chronic pain. If we protected each other from viruses to prevent chronic fatigue. If we funded mental health services to assist those with anxiety, ocd, and depression. If we promoted education about autism rather than trying to ‘cure’ it. Imagine a world where disability isn’t a tragedy, but a springboard for innovation! 

Humans should not be defined by their ability. We are inherently worthy of love, and we should never need to prove it. Oh, and by the way, Darwin was disabled. 

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100%

Something I like to think about is how my body has got me through 100% of the painful days so far. 

For all of the resentment I give my body for being broken, for not working properly, for hurting, for betraying me… it deserves credit for surviving. Survival is pretty much the only comfort there is when you’re chronically ill. I can’t tell myself I will recover. I can’t say I will feel better tomorrow, next week, or even next year. It’s another thing that is taken away, the comfort of recovery, the ability to imagine a future where I am ‘better’. In the midst of agony, I can tell myself it is temporary, but I won’t believe it. Because my pain is not temporary, it’s chronic. That means it doesn’t end, it just becomes different. Worse, maybe. Quieter, hopefully. Gone, never. But I have hope. 

I have hope that a painkiller that doesn’t give me side effects and does take away my pain is discovered. I have knowledge that new video games will be created that I can escape into briefly. And I have thoughts that tell me ‘You’ve survived before, and you can do it again. Your attendance record at life is 100%’

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I got Covid…


It’s been 2 years.

Of fearing for my life. Of being told by people I loved that if I died that was just ‘the way the cookie crumbled’. Of having ‘survival of the fittest’ and ‘natural selection’ shoved down my throat as if they are not eugenics.

In January, I tested positive for Covid-19. Thanks to the vaccines, I am alive. But the process of getting vaccinated is not safe/supportive enough for chronically ill people. This was preventable. This could have been avoided. But now this is the world we live in… a world where disabled people are made to feel unsafe. Where they know that, in the eyes of the government, and many members of the public, they are expendable. I am grateful to be alive and I am scared of living. 

Things that helped me survive Covid:

💉 Vaccines!!!

🫁 Deep Breathing Exercises

🧊 Migraine Patches

🍯 Honey, lemon, ginger & apple cider vinegar in hot water (a dream for sore throats!) 

🧼 Bubble Baths

🍋 Honey & Lemon flavour chloraseptic anaesthetic throat spray

🍊 Vitamin C & Probiotic

🤧 When you’re sick, do less than you feel able to, fatigue is hard to deal with so don’t go back to your ‘normal’ too soon! Take any exercise or movement gently.

😴 Make sure you rest as much as you can, put on a good TV show or your comfort movie, sleep lots, and keep drinking water and warm drinks. My chosen distraction was The Good Place, a show that I can confirm only gets better with rewatching!

😘 Your work and other responsibilities can wait. Nothing is more important than your own health so try to clear your plans and schedule time to just heal. (this is harder to do in practice, of course!)

Sickness on top of chronic illness or disability is hard for so many reasons, so if you, like me, have to deal with both, I hope you are really proud of yourself! Your strength is hardly ever recognised and even less frequently celebrated, but I see you. You’re doing great, sweet tea 🤪☕️

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Endometriosis

The NHS nearly killed me. The NHS saved my life.

I don’t know how to talk about this.
Unexplained period and bowel pain for my entire life. An 8 cm ovarian cyst. A test with a result. Relief spiralled into Gaslighting. A private blessing. A hidden complication. And me.
Waking up from a major complex surgery without painkillers, intolerant to every medication they tried, throwing up for hours with stitches, unable to move…

I can’t comprehend the glass window I look through. Memories shatter and visit me in fractured pieces puncturing my heart. How could I treat myself like that? How did I manage to cope, and not only cope but edit podcasts, live and love and function with this incredible pain?! I even became a freaking politician during all of this! (Hi, I am a town councillor now, vote for me when I apply to be an MP won’t you?)

A list of things that kept me sane: Lin Manuel Miranda, Taylor Swift, My mother, the person who taught me strength.

How could I be such a hypocrite and forgive myself for it… Will I ever forgive myself? Another diagnosis. How many does that make now? The doctor said I had been dealing with Endometriosis for years. The doctor said it was shocking my local hospital had tried to make me wait until the end of September for a consultation, not even the operation. The doctor said they should have operated when the first found it 6 weeks ago. What a wild thing, to be believed by a doctor.

And the heart breaking dichotomy that always strikes? The NHS nearly killed me. The NHS saved my life.

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NHS Staff Deserve Better

We clap for them, we praise them, but what are we actually doing to change things for them?

I have been in even more excruciating pain than usual, and I should have gone to hospital a lot sooner, but due to a history of medical gaslighting and dealing with constant pain, I find it hard to register when something hurting is ‘serious’. By which I mean, it is impossible to know when a hospital could actually help, especially if they usually make things worse. Not just if they are rude or if I experience a flare from sitting in the waiting room for hours, or if they don’t take my bloods properly and put me in more pain, but also because going to hospital when you’ve had bad experiences can be quite traumatic. Something happened. And for the first time in my life, when I went to hospital it showed up on a scan. It showed up in my blood tests. It showed up in the faces of the doctors who didn’t look at me like I was lying.

The doctors taking care of me on this occasion were very caring. It was my first inpatient stay as an adult rather than a child, and that changed how I was treated but also how I perceive the NHS. I now notice just how much is systemically wrong, how trapped the staff are in a system that is under so much strain, how new doctors are taken advantage of, and experienced doctors are desensitised. No matter how much these health professionals want to serve, they are often restricted by the pressures of bureaucracy and ‘efficiency’. For the majority of the doctors I have seen (note, the good ones, the kind ones) English is not their first language. And yet Brexit and our xenophobic laws mean we have created an unwelcoming environment for them, and we are limiting a great number of incredible healthcare professionals from coming to work in the UK by stopping freedom of movement. We clap for them, we praise them, but what are we actually doing to change things for them? Donations alone are not going to fix this system or change these laws. I hope in the next general election our votes reflect what our NHS workers deserve, because it is not this.